We've known from day 1 (now seems like oh so long ago) that Tyler had a heart-murmur. No one is surprised and the way it has been explained it would be more surprising if he didn't have it. It is not a huge threat at the moment and the plan is to treat it now while a drug called Indomethican will work vs wait until surgery is the only option. Tyler has been diagnosed with a small to medium (We were expecting medium to large) Patent Ductus Arteriosus (PDA) with Patent Foramen Ovale (PFO). The PDA is a path between the oxygenated and de-oxygenated outputs of the heart. The PFO is a hole between the two atriums. It allows mixing of blood between the two right and left atrium. These were required when the umbilical cord was doing most of the heavy lifting.
We have been assured that these are 100% expected in pre-term babies. In the vast majority of cases it would heal if left alone. The main reasons for treating it are that the drug will only be valid for a short time. It is a vasoconstrictor that will likely take his kidneys and digestive tract off-line for about 2 days so feeds have stopped. Second his cardiopulmonary system is working harder than it will need to when these are fixed to maintain the same oxygen saturation.
I've also just got the call that Tyler now has a PICC Peripherally inserted central catheter. It is as serious as Ellie's Central Line, but inserted in an arm (or leg), just not as long-term. It is only good for about 2 months. This is intended to be a longer-term placement for medications and TPN. The UAC and UVC that were being used have reached the end of their expected life, in addition they want to move as many skin punctures are possible as far from his core as possible. This should increase our ability to catch another infection before it really gets going.
So I don't get yelled at here are some new pics:
Much less hardware in out new home:
Resting comfortably:
Doing 3 things at once. (At his age breathing requires some thought)
Sorry it took so long to post today, Wireless here is NOT playing along.
2 comments:
Are those his mom and dad's fingers he's holding? What a champ. Keep it up - we're thinking of you. Call (or email) if I can do anything at all.
Love,
Beth
That last picture has to be the best picture I have seen in a long time! Ellie had a mild version of that same murmur just after she was born. It stuck around for about a month after and definitely got worse when her RBC got low. Which was almost the time, because they take blood so frequently for testing. We also met a bunch of kids that had the same thing.
Oh and we would like one large, one small and one toddler sized Blue Bracelet.
~Abby
Post a Comment