We have just finished checking into the PICU up here at DHMC. The plan is to go in for a shunt tomorrow. We have no idea what time at this point. Tyler's ventricles are bigger and the cyst is the same or smaller. We were hoping to avoid permanent hardware, but this is where we are. This should allow the fluid to flow out of his head and make room for other things.
It's almost nice to go in to the ED when neurosurgery is expecting you. You get some dirty looks from the folks with minor household injuries when we walk in and get called in almost immediately. It is all for not when we end up sitting in a room for 6 hours waiting for a slot in the PICU.
After the standard formalities we are checked in. Tyler is now NPO for his "add-in" surgery slot tomorrow. We came in too late in the day for a real scheduled slot. Hopefully we will know what time when it has been assigned. Even then it is subject to change.
They have actual rooms here. There is a built-in window-seat thing that I'm going to try and sleep on and Sharron is now crashed on a cot. Tomorrow looks to be an eventful day, so I'm going to call it a night.
3 comments:
Hi guys,
I'll be thinking of you today. Keep us posted. I hope you brought the magic sweater -- if not, let me know and somehow we'll get it up to you. No kidding, put it on and you'll feel better. Brogans call it getting "Martha-ized."
We love you.
Beth
Well tell Tyler that auntie Niffer is thinking about him as is the rest of the Gilbride clan. Let me know if you need anything!
Love
Niffer
Good luck today! Your friends in Hollis are thinking of you and wishing all the best. Tyler is one remarkable person, and we expect he'll pull this with flying colors....you and Ben may have a few extra gray hairs, but Tyler will be great!
Warmly,
Cassandra
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