Home on the range

(Tyler in his going home clothes, note the helicopters on his shirt in honor of the way he got to DHMC)

Friday was a pretty powerful day. Walking out the front door with Tyler was a new experience for us. This was the first time Tyler was outside on his own (without the benefit of a transport isolet). Once we got all the paperwork finalized and started out the door it hit me that we were now working without a net. The drive home was un-eventful. We made it home just in time for our "party". The ICN had organized a visit from our Oxygen supplier, The local EMTs and One of the ICN Nurses. We got our supply of oxygen all tucked away and verified that we knew how to run everything. The EMTs now know all about Tyler's case and what they are most likely to encounter if they are ever called. We're very glad they came as they had the wrong location on-file and we had to chase them down. The ICN nurse was there to make sure we were all tucked in and ready to go. (I'm carrying the O2 and Monitor. Sharron has the important bit :-).

We are now trying to get into a routine. With a bit of work one person can carry Tyler and all his gear. Most of the moves around the house take 2 people at the moment. We were able to get to our act together and visit my parents on Sunday night. After 2 hours of loading the car and setting up for the drive. Today we cut the load-up time in half and headed our for our first visit to the pediatrician (that went well too).