And so how is Tyler you ask

and So it sounds an awful lot like we are being jerked around with this surgery thing. We are not. We basing going to surgery on symptoms we are attributing to the increased pressure in Tyler's head. No one is going "Hmmmm we haven't done a shunt in a while let's choose Tyler." There is also a lot of information that has canceled each trip to the OR. By some miracle Tyler shows us his cards right before each scheduled surgery and gives us the information needed to postpone the surgeries. He is not a clear cut case for a shunt and he may not be for a long while. Our biggest problem with just sending him in is the only symptoms he displays are apnea/bradys. He eats very well, his neuro checks are very appropriate, and he does have some good alert time. We know his ventricles are too big and they need to be drained. Whether time will finish doing it or if we have to intervene remains to be seen. So in the mean time Tyler has great days and some not as good days.

We never mentioned how Tyler was looking or acting yesterday or Monday. He looks great. He is plumping up and starting to look like a normal baby. There is tone starting to develop on his arms and legs. Less flappy skin. He is starting to have a nice full round fat belly and his skin looks thick and not papery anymore. When he isn't overstimulated from pokes, exams, everyone talking loudly and stressed over him, he is very responsive when he is awake. Monday night and last night after he had been left alone for a couple of hours he woke up nicely and was alert for quite some time. He looks at us and smiles and acts how I'd expect him too. The parents are definitely worst for ware when it comes to surgery talk.