Woah!

[Tyler kicking back with no respiratory support.]

We were sitting with Tyler getting him rigged for his trip to the OR. Optimistic that the procedure was the right thing to do and would resolve his issues at least for the time being. He electivly removed respiratory support this morning (read pulled his own tube out) and was doing fine. All at once our house of cards came crashing down. His apenas went from bad to really bad, his temp went down (a sign of infection in preemies and newborns) and his pre-op blood-work didn't look good. 15 minutes before his scheduled OR slot we called down and canceled. The last thing we need is to go poking around in his head with even a hint sepsis on the loose.

He is back on a ventilator(intubated). Watching his recent apneas we weren't about to argue. Most last 20-50 seconds, these were lasting 5+ minutes. Before he was pulling out on his own or with light "Hey Tyler wake up", today he required "vigorous stimulation" and a few times an the help of an ambu bag. Infection was one of the counter-indications for surgery that we discussed with the team yesterday. After spending a night trying to get your head around the fact that your kid needs surgery it's tough to pull-out at the last second.

At the moment he is stable and resting quietly and we are waiting for the cultures to come back (~24 hours). We don't have to worry about apena overnight on the ventilator (it will breathe for him as required). Once we have the results back we'll re-group and try this again.