I want Puffs!

It's Empty!

Tyler had a quiet night.  We've also had a quiet morning too.  He's watching Tv right now a little annoyed with us because we won't give him some puffs or cereal.  He actually asked for some puffs.  So he feels better enough to realize he's hungry.  He hasn't eaten a snack never mind a meal since Sunday or Monday.  So everyone is very happy to see him asking for food.  Unfortunately, he needs to start drinking before we can give him food.

Here is the conversation we had with Tyler this morning:

"I want puffs"
"Sorry Tyler you need to start drinking first"
"I want a spoon"
"Ok"
"I want a bowl"
"Let me see what I can find, you going to make spaghetti?"
I give him a cup. He puts the spoon in and tries to scoops something out. 
"It EMPTY!!!! I want puffs!"

So I think he's starting to feel a little better.  He looks better to me any way you look at it.  Today he's even able to sit upright mostly by himself for a few moments while we change his pillow case.  He still needs his oxygen and still sounding like he has a lot of junk in his chest, but at least he looks like he's getting some strength back.