The night before last Tyler hit a high Oxygen requirement of 100% @ 30L/min. (Imagine an 8 Gallon trash bag per minute.) The flow is so high because he is using a mask and it does not fit so well. We tried a nasal canula twice yesterday, thinking it would be easier to eat and talk. Tyler was NOT impressed. He screamed more than he did for the IV, not yet sure what the issue is there.
Sunday morning his O2 was at about %60, I woke up this morning and he was at %25! The mask wasn't even on his face! He spent most of the night with the mask on his chin. At the moment we are back up at about 30% so he can eat. And oh man is he eating. So far today we've had 6 oz. of OJ, Cheerios, SpecialK, Cereal bar. He is eating so well we actually ordered lunch for him!
Morning rounds just came through, Lots of changes in the works for today. We're going to try him without supplemental oxygen. The IV has been disconnected, the catheter is still in but no fluid running, hopefully this will make him thirsty. And he's been given clearance to walk around his room. At the moment he's standing with mom's help. If we can keep him off the oxygen or make do on low-flow we might move up to PEDI today or tomorrow.
Tyler feeding his Monkey some cereal. Just after I stopped recording this he asked for an old oxygen mask for Monkey, once it was on Monkey he pulled his oxygen hose and tried to hook Monkey up.
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