Tyler has been having some good days and some not so good days. Here are a few pix from the last couple of good days. And really the bad days are nothing more than a grumpy child who isn't eating or sleeping well. We think he's uncomfortable from the bump on the back of his head. He'll often rub the bump while saying "Ouwie". GI was pleasantly surprise that he weighed the same this week as the he did 6 weeks ago despite everything that has happened to him in the month of April. We will see her again in 4 weeks and hope that he's gained a little weight. We go back to Lebanon on Thursday for a follow-up MRI and appointment with neurosurgery. We h
ave a lot of questions. Maybe some can be answered.
Tyler has been having some good days and some not so good days. Here are a few pix from the last couple of good days. And really the bad days are nothing more than a grumpy child who isn't eating or sleeping well. We think he's uncomfortable from the bump on the back of his head. He'll often rub the bump while saying "Ouwie". GI was pleasantly surprise that he weighed the same this week as the he did 6 weeks ago despite everything that has happened to him in the month of April. We will see her again in 4 weeks and hope that he's gained a little weight. We go back to Lebanon on Thursday for a follow-up MRI and appointment with neurosurgery. We h
ave a lot of questions. Maybe some can be answered.
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