A reminder of Who is driving this Bus!

Tyler is driving this bus!

Once again I was greeted by a cheery neurosurgeon trying hard not to look concerned. She asked about how Tyler was acting which I quickly reply good, how are his pictures. Tyler's shunt is working! Working almost too well. So well, he surprised the surgeon. His ventricles are about half the size they where two weeks ago. And what's more, there is now a lot of fluid surrounding the outside of the brain just under the skull. The concern comes in with bleeding inside the brain. With such a big shift in fluid, there is a high possibility of strained blood vessels breaking. Thankfully, Tyler's MRI does not show any signs of a new bleed today. We spent a good half hour just chatting and watching Tyler be Tyler. The surgeon was amazed at his vocabulary and how well he communicates. He's asking for things specifically using 3 word phrases like "I want a bagel" or "What is this" even adding the appropriate please and thank you to things. He was also busy climbing up and off the chairs and scales and "jumping" (we look like we are jumping but one foot still doesn't quite make it off the ground). The surgeon was very pleased and excited to see how well he's doing.

As far as the plan, watch and see. We will go back in about 6 weeks for another MRI. If before then he has any weirdness, we are to get him up sooner for a MRI. Weirdness would be loss of appetite, fever, vomiting, (add any unpleasant symptom you feel here). For now we watch. If he starts having issues, he may need to have the valve changed out to one with a higher pressure which lets less fluid pass through. Yup that would be another shunt revision. So we are going to sit back enjoy our two year old and take it day by day, turn by turn.