Friday, December 18, 2009

No longer Purple.

In true Tyler form, he came home from the ED with the most energy I've seen all day and wanted eat and drink. I think all he did was nibble and sip on something until he went in for a nap at 330. He's still sleeping but not without me checking every once in a while that he's breathing and the right color. It's been quite a day and I'm hoping I can sleep tonight.

Short side-trip on Tyler's Bus.

We are back home. At the moment the plan is to watch and wait. We don't have a single combined answer to what is going on. We ended up spending more time waiting for doctors to call each other than anything else.

Pedi has seen viral cases cause the blue fingers and toes 1-2 month olds. Other than that call Neonatology.

Neonatology is leaning towards something viral. They don't know how that explains the blue fingers in an 18 month old. They suggested calling Neurosurgery.

Neurosurgery says to call back if there is still something not right after viral causes have been ruled out or neurological symptoms develop. Otherwise they don't see a reason to go poking around in his head.

ED Doc said that she found all of the above rather unsatisfying and had hoped to be able to give us a more solid answer.

So we are left with providing care and comfort as if it is a virus (most likely) and watching for other symptoms.

Hopefully, that is all.

Just when things were getting the good kind of boring.

This morning Tyler work up with a EPA super-fund site in his pants, blue fingers and toes, and a nasty case of the grumps.. I'm writing this from an ED bed in Nashua. We'll post when we know something.

And for kicks here's a pic of a recent "art" project.

Wednesday, November 18, 2009

November is Premature Awareness Month!

I'm collecting clothes for preemies! November is Prematurity Awareness Month. The Upper Valley is doing a clothing drive for the ICN at Dartmouth to help give clothes to babies born way too early. To see Tyler wear his first outfit 3 weeks after he was born was a real emotional triumph. (See earlier post titled "Tyler's new clothes" http://twentyfourweeks.blogspot.com/2008/06/tylers-new-clothes.html ) Seeing real clothes on him gave me a sense of normalcy and most of all hope. Dressing a baby provides so much enrichment and bonding. It helps the baby to familiarize themselves with mom and dad. It helps the parents to feel like they are a big part of their baby's life. Please help me pass hope to another family currently in the ICN with a donation of preemie clothes, blankets, or hats.

At the bottom of the this web page are links for patterns for those crafty people in the group who would like to help out as well as on-line stores.

http://www.marchofdimes.com/vermont/8026_30288.asp



We see a lot of Dr's tomorrow to start RSV shots for the winter. We've been extremely busy chasing after a walking boy who (you guessed it) LOVES to climb everything. We've caught him climbing up 2 toys he's position to get onto grandma's china cabinet. I don't have a lot of spare time to post right now. HA!

Friday, October 2, 2009

And he's off!


Yesterday was a very exciting day around here. Our regular Early Intervention therapist came back from some time off and apparently tyler was in the mood to show off. Sharron had to wake him up from his nap which is usually a recipe for a pretty grumpy session. Not the case yesterday. We got 3 or 4 sets of 2-4 unsupported steps out of him. This is really new, so new that neither Sharron or I had seen more than one or two unsupported steps from him so far.


This is the 3rd or 4th try at getting him on tape, and not a very good angle, but who cares? he's walking! Apparently the only items Tyler deems important enough to actually walk for are the remote control and a cell-phone.


Rachel is just loving school. If she had her way she'd go 7 days a week. Every time I ask her what she did at school that day the answer is always the same, huge smile and "PLAY". Everything else fits in to the no news is good news category.

Saturday, September 19, 2009

Bet you didn't expect this!



So, I've been letting Tyler explore outside. He's been crawling and cruising around the playground and the chairs and such having a good time. Today, he found the stairs to the playground. No hesitation, he just started up on them. He was half way up the first time before I noticed him climbing. Talk about heart stopper. In all he went up four times before I called it quits for the day. He was not happy to go inside this evening. (Sorry the video is sideways, sometimes Ben forgets that video has to go the other way. He may be able to fix it later.)

Sunday, September 13, 2009

He can stand!















To give you an idea on how strong Tyler is, watch this video. He is easily pushing his big sister around in a wooden carriage. And he loves it. This week he has taken many great "risks" and can now stand unassisted for a few minutes while playing with a toy. He has even flirted with trying to take his first step. I don't think it will be too much longer before he walks.



We are keeping busy with normal kid stuff these days. He is a normal kid with a big personality. At his 15 month wellness check a couple of weeks ago, he weighed in at 21 1/2 pounds. I'm just waiting for our normal therapist to come back and a talk with neonatology later this month to find out if they have any prefaces on when to turn his car seat. His feet are starting to look scrunched up and he's fussy now when we are in the car too long. For the most part we are enjoy the weather outside and doing activities. Just watching him grow like he should and like any proud anxious parent, waiting for that true first step.

Wednesday, August 19, 2009

August 2009 Penguin Shot

Fresh off the camera, penguin shots from this morning! Tyler is doing great. There really isn't a lot to say otherwise. We are having a full and fun summer playing and eating. He loves his food. He is pushing his wagon quite well now. Steering is a little difficult but everyday he gets more confidence with it. His award winning smile now shows off his teeth. Three the last time I dared to count. I think we had the shortest eye doctor visit in history. In and out in 15 minutes. His eyes look great, the wonder is getting better. He could still need the muscle surgery, but that is way off the schedule. Tyler goes in for his 15 month check up next week so I'll post the growth stats then.

The biggest news I can think of is Tyler was moved out of our room finally this week and into Rachel's room. Seems to be alright so far. Rachel thinks it's great her brother is "sleeping over" in her room.

We did go to the beach this summer. It was very busy. We had beautiful weather just about everyday. By the end of the week the kids where done and wanted to go home. Tyler did spend some time in the sand, he preferred to eat it than build in it. He also loved spending time in the kiddie pool. It was hard to get him out of the water.


Tyler is getting very confident walking behind his wagon. I don't think it will be long before he's off on his own. Can you believe about 5 months ago we were having a hard time getting him to sit up on his own.
This is the most infection laugh I think I've ever heard. His sister can get him to laugh this way at the drop of a hat.

Monday, July 20, 2009

He's Crawling!


One fast little boy! He's mastered crawling in the last two weeks. We are exhausted from chasing after him. He doesn't listen to "No" unlike Rachel did that this point. It's not because he doesn't understand, it's he doesn't care to listen. So we have been trying feverishly to child proof this house and he keeps showing us new whys where it isn't. Over the last two weeks we've seen him start to wave (I haven't been able to get that on video yet). We can hear "hello" and "bye bye" when he is waving. The other word we've noticed is "ball". He likes to shoot up an arm with a ball in it and loudly announce "Ballllllllllll". (again I haven't caught this on video yet).

As you can see by the pictures, he likes to get under the table and whack his head repeatedly and then start screaming for me to get him out. He hasn't read the memo that my back can't do that easily.




Rachel is sorta dealing with all this. She is a little upset that he comes over into what she has set up to play with thinking it was just out of reach from him. We've had a couple of green days, where we can tell she is punishing us for Tyler's actions.

Thursday, July 9, 2009

More Peek a Boo

I couldn't resist uploading this video. Tyler adores his sister and Rachel is rather fond of her brother. I wonder how long that will last? As you can see they are doing great!


Monday, July 6, 2009

Finally some Summer Pictures

Today it was another beautiful day and the kids could go out and play. Tyler seems to like to play in the pond as well.




Friday, June 26, 2009

A month of follow ups!

We have been very busy with doctor appointments this month. Tyler had his 12 month wellness check, a development interview, neonatalogy, and neurosurgery on various days. To give you an idea of how fast he's still growing, he is close to a pound heavier since the beginning of the month. He's still doing 1/2 a pound in 2 weeks. Our last appointment, Tyler was 19 pounds and 14.5 ounces. That is a 1.5 ounces short of 20.

Not much was said at the wellness check with his pediatrician. Actually I didn't get a lot of my questions answered, like what does the milk intolerance mean and is the wheezing under control. In fairness these are not questions that can be definitively answered in one visit no matter how much a parent wants them answered. Other than that the pediatrician is happy with his growth and development. He suggested we start weening him from bottles and the binky. Obviously he isn't familiar with Tyler's itinerary of when to do stuff. The binky hasn't been a focal point since he could put things in his mouth and he's been drinking from a straw for 5 months now.

We had a long visit with development up in Lebanon the second week of June. Two doctors played with Tyler and asked us questions about what he does and how he does things. They were both charmed by his smiles and LOVED his belly laugh. He wasn't able to get into a sit yet and he still needed help standing up. Over all they were very happy with his progress. They confirmed that he is delayed and it looks like his head size is the biggest cause of the delay. He just isn't strong enough to lift his head and develop some of those motor skills. He is delay also cogniatively, but those delays directly tie into this gross motor skill delay. They place him developmently around 6 to 8 month in age. Remember he is 10 month gestiationally even though he is 13 months chronilogically. Gets confusing doesn't it. The cool part is, they think Tyler is developing so beautifully, they don't want to see him for a year.

We also saw neonatalogy that day. They were also very pleased at his progress. I believe it was decided he will be recieving the RSV shots again this fall and winter because Tyler is on and off an inhaled steriod for his lungs. This is probably the only good things about him wheezing. Until that starts up we don't have to see them again until September.

This week we saw neurosurgery and had a quick ride in the MRI machine. Please do not say "ride in the machine" while Rachel is in the room. Ben was just talking to Tyler about his MRI ride and Rachel heard it and got very upset. "Tyler doesn't ride in a machine, Rachel doesn't ride in a machine!" for the rest of the night. It took a lot of reassurance that she wasn't going and that the machine was only going to take a picture of Tyler's head. Speaking of the picture, it was beautiful. The orginal cyst that was pushing midline at the base is now all but gone. Midline is now midline again. This is really cool, because the cyst is no long abstructing his natural path ways for the spinal fluid (the fluid build up that lead to the shunt). We will never know if the shunt is doing the work or if he's doing the work now unless the shunt fails and Tyler starts having symptoms. But this could mean on the positive side, he'll never have to have a shunt revision (knock on wood!). The cyst in the forward area and his ventricle are not any bigger and it's ok that they are not significately smaller. The fluid between his brain and skull is now about normal which means things are draining. The brain all around looks like it's developing normally and right when it's suppose to. The cysts are damaged brain area and will never develop, but the areas around the cysts look like they are ok. So far it looks like the brain is compesating for the missing areas and we will contiue to closely monitor Tyler's physical and mental development. And the bonus is, we don't have to see neurosurgery either for a year.

This month Tyler has also made leaps and bounds towards full mobility. He is now getting to a sit all by himself, pulling to a stand at furniture all by himself, walking around the furniture, and not concerned about getting rug burn on his head to get from point A to B. I will now even find him standing up in his crib bouncing with joy. I'm afraid the gates are going to have to be installed soon.


Saturday, June 6, 2009

A Wonderful Day at Dartmouth!

Did anyone ever think we would say "We had a wonderful day at Dartmouth!"? This was the first time we've made the drive up to Lebanon because we wanted to, not because we need to. We went up Friday night and spent the night at a hotel just to help cut down on the time crunch. This is the second night Rachel has spent up in Lebanon through this whole saga. Ben reads a compelling rendition of Green Eggs and Ham. Tyler also like to listen to story time. Granted he's trying to figure out how to get the paper and chew it.

It was up near our normal time today with a quick bite to eat at the hotel and off to the hospital. The walk registration began at 9am with an hour of meeting the other walkers, kids crafts, looking at the beautiful posters of ICN graduates, and general hobnobbing. We met a few of the doctors and nurses here and was able to chat with them. Tyler of course put on his best flirty smile and showed off. It's amazing how social this child is!

Around 10 we loaded up our Cadillac of a wagon and were off. By the way, this is the best wagon I've ever used. Both kids are strapped in and I love the canopy. The weather was beautiful, sunny and mild-great walking weather. Both of them were very happy to ride most of the way in the wagon.




About half way through the walk near David's House, the DaRT team landed a helicopter and parked a transport ambulance for us to meet and greet with. This is the first time since May 23, 2008 Tyler has seen the helicopter. I don't think this is the one he rode in, but does it really matter. He was even allowed to sit in the pilot's seat for pictures.










At the end of the walk there was a cook out. A few more of the ICN staff were able to come and meet and greet with us. The ICN is over booked today, they have more kiddos than bed spaces so many of the staff members were very busy. The people we did see all were happy to see us and especially Tyler. Tyler, despite needed a major nap by this time still have smiles and laughs to share.

The Parent's Council where generous enough to make posters of ICN graduates to hang around today event. Tyler was one of the babies. It brought tears to my eyes to see what a beautiful job they did with the pictures for all the babies.

This has been a very gratifying day for us. We want to thank all of those who sponsored us. We greatly appreciate your support! THANK YOU!

Thursday, June 4, 2009

We Are Walking!

Saturday June 6th we are walking in the March for Babies up in Lebanon. This organization has done a lot to improve the odds of premature babies survive as well as research how to prevent prematurity. Without all this research, Tyler would have a different story. The technology and procedures that he needed to just keep him alive was mind numbing. The stuff they did to me to help ensure his lungs develop quickly and all the monitoring was all designed to give him the best shot at life. No one knows why my water broke. They can not even speculate on a reason. Another area the March of Dimes helps fund research in, is why there are membrane ruptures and the effects on the fetus. This is why we are walking. We appreciate any help you can give us.

http://www.marchforbabies.org/SharronBenRachelTyler















Tyler's Birthday Cake!















Tyler loving the small piece I gave him. He was covered in frosting.

Friday, May 29, 2009

Made it through a week!

I haven't had to clean up any formula messes in a week! I think this has been the first week in 5 weeks that Tyler has kept everything down. Gross topic I know, but right now I feel elated that I'm not shying away from Tyler's mouth when he coughs, burps, or looks funny after a bottle.

On a more pleasant topic, EI is very happy with his progression. We talked for a while yesterday and came to the conclusion that his areas where he's behind are the motor skills. He can chatter and make all the appropriate sounds if not over do it, he is the most nosy curious baby and show interest in just about anything, despite the formula issues he is feeding very well on solids, and seems to be learning all his new skills at an appropriate pace. We are kinda excited to hear what development at Dartmouth has to say about him in a week and a half. With our luck, he'll choose to be extra stuborn that day and not show off any of his skills.

This is on Tyler's birthday. The white thing is a diaper that was too big for him during his first weeks of life. Man has he grown!

Saturday, May 23, 2009

1,one,uno,first,壹,I,b00000001,x01,un,eins,فرد

Holy Cow! (or Penguin)

Today Tyler is one year old!

I think I know how dogs feel now that one year felt to me like 7. I'm writing this just a few minutes before 3:58 the moment he was born. Much has changed in that year
  • Then: 2lb 13.8 Oz Now: 19lb > 6.5 times heavier. Uncle Tim suggests a party when he has cleared 10x his birth weight (~28 lbs). Rachel will be 95 lbs before she is 10x her birth-weight!
  • Then: 14.5" Now: 29" exactly double! Odd side note--From the back of his neck to the bottom on his bum it measures a 1/2 inch short of his birth length.
  • Then: 9 tubes, wires, Now: nothing!
This boy can grow!

A 1-year penguin pic:




The same Penguin with Rachel for Scale:



Tyler checking out the structural integrity of the pool one afternoon this week.




Early Intervention has been on us to get Tyler to push up with his arms.



He's come along way! He's almost able to to pull those legs under him himself. If you put him on all fours, he can stay there and rock.



To think in a year we have come such a long way! Go Tyler!

Wednesday, May 13, 2009

Much Needed Photos

All of these photos are from the last 3 days. As you can see, Tyler is his happy smiley self and Rachel gave me a rare moment looking at the camera.

It's been a week since I've cleaned up any messes. Yeah! He is still gulping the new formula down and is eating 3 small table food meals a day now. I expect a 19 to 20 pounder at his 1 year check up. Can you believe in about 2 weeks Tyler will be 1. I'm nervous about giving him anything dairy now. I'm kinda anxious to get to his 1 year appointment to discuss what this formula intolerance business means. Will he ever have milk, is he highly likely to have Ben's food allergies, does this child ever do anything the easy way. But all his appointments with various doctors are scattered about June. Till then we will cautiously add new things to his diet and hope it all stays down.

Tonight, we were getting bath time ready and Ben had both
kids on Rachel's bed. I came upstair hearing this gut tickling laughter. Rachel was playing hide and seek and Tyler was hysterical. He didn't have to see her "hide" or "appear", he started this wonderful laugh just by her words. It was the cutest darn thing.

Saturday, May 9, 2009

March of Dimes Walk

Sorry that there is still no photos. We are patiently waiting for Blogspot to fix this.

We just signed up to walk in the March of Dimes Walk on June 6th at Dartmouth Hitchcock Medical Center in Lebanon. Check out
http://www.marchforbabies.org/SharronBenRachelTyler

Friday, May 8, 2009

Tyler feels heavy again!

Tyler loves to keep up on our toes. He's making it a month long reminder of how he's in charge here. We've got the major puking stopped now. He really seems to like his new formula. Over the last week he's taking in an average of 24 ounces a day compared to the forced 18 ounces. He's also ramping up his table food intake. We started giving him some fruit and either a waffle or pancake in the morning in addition to lunch and dinner. He keeps it all down. We've had a few nights were he's vomited a little (compared to last week) after he's in bed. Tyler also has a rather hacking cough which could be triggering the mess. I called the pediatrician again today to make sure they didn't want to see he again about the cough and get some reassurance that we are on the right track again. The nurse seemed to think we where and he just may need a little more time to let the old formula get out of his system. She also suggested we start using his nebulizer again to help with the cough. The really nice thing I noticed with Tyler to day is he's heavy again. The end of last week he lost some of his buddha belly and didn't feel as heavy as I thought he should. His little belly is round and plump again and he feels solid. Yeah! Now if only we could get him to pop those teeth. He is still a toothless wonder. (There is a really cute picture to post, but for some reason blogspot seems to have a problem)

Saturday, May 2, 2009

Then Again?!?!?!

So Tyler has been doing just fine on the new Formula. After Rachel had gotten sick we decided that he has had a stomach virus that just needed to run a long slow course. He hadn't vomited in three days. The pediatrician said we could switch him back to the old formula and see what happens. Ben gave him a couple of bottles today 1/2 new and 1/2 old formula. Tyler could not hold it down. We still don't know if it's the virus or the old formula. So we are going to keep him on the new formula for a while and try the old formula in a couple of weeks. And through all of this Tyler smiles and acts normal. He barely pauses to empty his stomach and then goes about his day like nothing happened.

Thursday, April 30, 2009

Good news, Bad news....

Good news, Tyler is most likely not allergic to formula. Bad news, Rachel now has what Tyler has. Let's just say we spent more time cleaning up after breakfast than we did preparing or eating it.

Wednesday, April 29, 2009

Well he puked again.

We got so far today. But in the end he still puked. He wasn't really into eating all day and dinner just didn't stick. I did call the on call provider and had a long discussion that ended with no calling neurosurgery. We were able to give the Dr enough information to comfortably say it's doubtful the shunt has failed. We could still be looking at an intolerance issue and/or a stomach bug. We will be calling the pediatrician in the morning to see if there is anything else we can do or if we just need to give him more time.

Tuesday, April 28, 2009

Formula Intolerance?

We just got back from the pediatrician. We believe Tyler is having trouble with the formula. We've switched him over to a formula for kids with food allergies or colic. He's had one bottle so far and kept it down. YEAH! If the formula is the problem we should see results very quickly. If he is still having issues in a week we then go to the next step and look at the possibility of reflux.

Despite having a problem with keeping formula down for the last 3 days, he still weight in at 17 pounds and 15 ounces.

Monday, April 27, 2009

Poor Baby

We are still having issues with Tyler keeping formula down. It is so weird. He doesn't have a fever and isn't acting sick, he just can't keep formula down. I did call the pediatrician today and was referred to Dartmouth. Unfortunately I won't hear back from them until tomorrow. I don't think the poor boy has kept much of anything down today.

Sunday, April 26, 2009

Penguin anyone?


Now there's a picture worth alot more than an thousand words.

16-June-2008 ->














<- Today

Tyler seems to be feeling better today, everything stayed down :-)


(Same Penguin in both pics, It's not a camera trick :-)

Saturday, April 25, 2009

Not sure what to think.

Today was an interesting day with Tyler. It started off normal like any other morning at 7 am with a hungry little boy. He was happily sucking down his bottle when he hiccupped. The entire bottle bomberang right back up and covered me. We are not talking a little spit up, we are talking 5 ounces of formula all over me. Tyler is no worse for wear smiling and relativley unphazed by what just happened.

We decided that since he wasn't upset, we'd just watch him for the day and take it easy. Ben was feeding him lunch a little later and he did it again. Ben called the doctor and got the standard wait and see, this could be any number of things and there aren't enough symptoms from any one possibility to warrant a trip.

Tyler ate pretty well at dinner and held it down for a bath. He had is bedtime bottle and is happily sleeping. Hopefuly he was just having an off-day and will be back to his normal self tomorrow.

Thursday, April 23, 2009

wow 1 year

A year ago today we started this blog. At the time I was almost apprehensive that we so shamelessly imitated what Gib and Abby had started a few years earlier, as it turns out their example made an extremely difficult time much easier to cope with. There is alot that never made it into these posts. I assure you it's better that way, the low-end on this roller-coaster can be *really* low.

At one point my mother bought a preemie book. Soon after the brain-bleed (PVHI) diagnosis we were over at their house and she said she was going to throw out that book, I asked why. She did not like the prognosis it gave for PVHI. I had a copy of the same book, I didn't like the prognosis either, but it pretty closely matched what the Doctors told us could happen. They did say that they had high hopes for Tyler. So do we!

I firmly believe having a forum like this to vent the fears and frustrations contributed a lot to the current status of things. The comments from friends and family with thoughts and support would often make our day. Knowing you are not alone is priceless in times like that.

This little corner of the Internet has become an important part of our lives over the last year. Thankfully it has recently become mainly a place to share pictures and milestones (knocking on wood that it stays that way). Unless Google changes their mind about recording EVERYTHING FOREVER someday (far) in the future we can show it to Tyler and he can see what a little shit he was for coming so early :-)




















In the last year that this blog has been on-line we've had 1,600 visitors, 15,600 visits.

Monday, April 20, 2009

Standing?!?

We've seen some changes this week with Tyler. First of all, he is now in a big boy car seat. My back just couldn't carry him around in the bucket seat anymore. Tyler really seems to like his new seat. He can reach the strap that tightens everything and chew on it. Big chewer these days.

The other big thing is his ability to stand with out us holding him now. We can place him standing by the ottoman or couch and let him go. Tyler can keep his balance holding on to the furniture for a couple of minutes. He has the biggest proudest smile when he's able to stand like this.


His Early Intervention review was nothing exciting. We just updated he goals.

Monday, April 13, 2009

Happy Easter! I hope everyone had a great day. Things have been well here. Rachel had a little sore throat and fever last week, but we seem to have kept it away from the rest of us. Tyler is his normal happy little self.
Tyler did have an eye appointment last week and it went very well. He still turns out an eye especially when he's tired. Between the therapist that comes once a month to work with his eyes and the doctor, it was decided he can see out of both eyes. Tyler is also working very hard to bring both of his eyes into alignment constantly. We can tell that he can focus on an object with either eye and we watch him struggle to keep both eyes aligned. In certain positions he can bring both eyes in and look out normal at an object. We discussed patching to help with vision and training the lazy eye to come in in previous visits with the doctor. This week's visit, the doctor is very pleased with Tyler's progress with eye alignment. It was also discussed that since he can focus with both eyes at any given time, he can see fairly equally out of both eyes a patch will be of little use to him. A patch is designed to help the weaker eye's vision strengthen which will in turn strengthen the eye mussel. Since Tyler doesn't seem to be visually weak in one eye, patching him will do very little to bring in his alignment. The Dr wants to keep watching him and give Tyler more time to either bring that eye in himself or declare that he needs help. We may consider doing an eye surgery to correct the mussel. We are going to wait awhile and give him more time. As long as he continues to try bringing in his eyes, he continues to focus on things with either eye, and can continue to hold alignment longer and longer, we will do nothing but watch.

We also realized that Tyler has been working with Early Intervention for 6 months now. Time does fly. This coming week we will be doing his 6 month review. We as parent and the therapist will sit down and review his progress and goals. We will also adjust his goals and create new ones. It sounds like a state mandated paper generator more than anything. Tyler is doing so well with skills. On somethings he's ahead of his gestational age (he'd be 8 months now if born in August), while others he's slightly behind. We've decided he's mentally an 11 month old baby stuck in a body with the skills of a 6 or 7 month old baby. He still has no interest in being on his tummy, which means he has no interest in crawling. Yet he wants to stand and is trying very hard to figure out how he can pull himself up on furniture and such. Luckily he doesn't have the strength to do anything about it yet. Slowly he is resigning to be more open to the idea of tummy time and rolling to his tummy. In the last 2 weeks, we've got him to stay on his tummy without screaming for about a minute a couple of times. A minute doesn't sound very long, but for this kid it's like an hour. At this point we don't think he's delayed due to brain damage, we think he learned that tummy time is very uncomfortable position to be in, visually hard to see correctly, and hard to play in. Time and gentle persistence will help him. He may not roll over well or push up onto his arms when on his tummy yet, but he can sit unassisted for hours with the ability to twist and reach well beyond what an 7 or 8 month old is suppose to be able to do.

The other struggle Tyler is dealing with is wanting table food and not having any teeth. He LOVES to eat. In the last month, Tyler has given up nursing on his terms and now takes a bottle or drinks with a straw. He also wants to eat what we are eating now. We are able to give him a few things like canned pears and very soft cooked carrots. Things like pasta and bread are hard to give him with no teeth. He is funny trying to eat them though. I expect the next couple of months to be very tiring as Tyler tries his best learning to be mobile and eating new things. He is a very determined little boy who know exactly what he wants and is showing the ability to solve the problems to get what he wants. He is definately his parent's child.

Thursday, March 26, 2009

All Smiles


We seem to have our happy, flirty little boy back! He seems to be feeling much better. I still hear a slight rattle in his airways and there is still a slight cough at night, but over all he seems over the cold. Now Tyler is his normal smiley and very active self. He really wants to move on his own and arms and legs are constantly moving. We just need to convince him to put weight on his arms and I think Tyler will be gone. When Tyler is on our laps, he will mimic crawling around on us. He loves to find my necklace and try to suck on it. I guess we better baby proof the house.