Wednesday, November 9, 2011

Lolly Pops.


This week has been dealing with runny noses, ear infections, and fevers.  So how else to brighten a sick child's day other than with a lolly pop.


Friday, September 16, 2011

What normal looks like.

We have had a really busy summer.  Doing normal, busy summer things.

Click me to see what normal looks like.


Our wonderful librarians caught us in the act of normal last week.  Let me tell you, it feels great!

Here are more acts of normal that we engaged in over the summer.

Freezing at the top of Mt. Washington

First Day at school

Saying "Hi" to a baby chick.

Funny blue tractor rides at Storyland

Ok, so popping out of a pie is pushing normal a bit.  But hey it's normal for our kids!

Contemplating how huge crane rigs work.

Tootling around in his car at Grandpa's!
So normal has our summer been, it's been hard to write.  Which in the grand scheme of our lives, is a good thing.

Saturday, June 25, 2011

Both feet off the Ground!

Big day for Tyler!  We've been working for months to get him strong enough to jump.  It's a gross motor skill that has been lagging behind a bit.


That toe is off the ground!

We do a lot of jumping around here.
Tyler had an appointment with his development team Wed of this week.  He did really well.  We should have the report in a few weeks with the specific information about how well he's doing.  Tyler also has started school and will have classes through most of the summer.  He loves it.  Goes in with out a care that I'm leaving and cries when I come to pick him up.  He is so ready for school.  With any luck, we will enjoy a very fun summer.

Monday, May 23, 2011

Big Boy!

 Happy Happy Birthday, Tyler!  I can not believe you are 3 today.  What a handsome big boy you are.


We Love to wear our PJ's like this or with just one leg up.




Frosting goatee. 
Penguin Picture. 


We had a good day.  We will officially celebrate next weekend. 

Wednesday, May 11, 2011

Thank you Everyone for helping out with our March for Babies walk!  We raised over $600 this year which is amazing.  Thank you.

 
Can not go anywhere without Goldfish.


Tyler did walk!  He also rode in the wagon, rode Grandpa's shoulders, and got carried by everyone.  I think he spent less than 10 mins in the wagon all together.

Rachel spent a good portion of the time riding, but then she always loves a ride.
 It was a great day!  We say many people we do not often get to see.  Sadly the two nurses that were Tyler's primaries have moved on to new adventures.  It was fun to watch a doctor and a nurse get dunked into the dunk tank but the ICN Graduates themselves.

We have been busy with transitioning Tyler from his Early Intervention team to the school district the last few weeks.  This week was the last time his therapist came out to visit us for an official session.  It's so hard to loose such a trusted and well loved member of Tyler's team.  She has been with us since the beginning and Tyler worked her hard for every accomplishment he made.  We will miss seeing you every week and Tyler is asking for you.

Watch Mom, I can make you break out in a sweat in no time flat!
 We have been attempting public playground this week.  Scary stuff for me since most of them are not built for a kid who gets super distracted with an inability to figure out where steps are well.  He loves it though.  It really is great to see him start to move with confidence on these things.  And bonus, it really strengths all those muscles and helps with his motor skills and confidence.  

Don't you just love his giggle.  It is so infectious!


















Thursday, May 5, 2011

WOW!






Click to help us!

Not too late to help us!  We walk in 2 days in the Upper Valley March for Babies.  Here is Tyler's poster this year!  Wow what a difference 3 years make.  He's such a happy boy. Walk is this Saturday!

Thursday, April 21, 2011

A Message from Tyler!

Hey!  Would you support me as I walk beside my little red wagon this year when Mom and Dad take me to The Upper Valley March for Babies?  Just hit the purple sponsor me button over to the right.  
Thanks, 
Tyler
His favorite volume level these days is 11.  Yup really loud.
In a little over two weeks, we will all be heading to Lebanon for our annual March For Babies walk and to visit at the ICN Reunion.  Yes, the little red wagon will be going with us, but I'm excited this year.  Tyler may actually walk parts of the Walk.  He doesn't always want to sit in the wagon or the stroller for our neighborhood walks anymore.  He wants to get out and as he says "Tyler walks himself".  This will be a huge emotional achievement for me considering at the start we were told Tyler may have some real inhibiting disabilities due to the prematurity and the brain bleed.  This child is just amazing.  He's over come so many obstacles and probable outcomes.  He is constantly wowing the doctors with how well he's doing (right now the big wow is how well he talks!).  Today he floored the GI doctor when she came back in with a new prescription sheet by asking if he could hold his new prescription.  Clear as day he says as she comes back in, "Can I hold the prescription?".  When the Dr didn't respond to him quick enough, he holds his hand out and again asks "I hold the prescription".  She was just tickled and showing him off to another Dr.  Yes we still have our bumps and he does have a lot of extra needs that still take up a lot of my time, but WOW!  He walks, talks, thinks, and is just plain stinking cute!  Through all the hospitalizations, sicknesses, doctor appointments, not seeing well, he is the happiest, giggliest little boy.  What a strong character he is.  I hope nothing ever takes that a way from him. 


A rare moment of quiet sibling love yesterday.
We did see GI today because he is very slowly gaining the lost weight from the RSV.  So the prescription is hopefully going to stimulate his appetite and get him more interested in food.  We will have another weigh in in about a month to see how well that works.  We had today's visit because when he had his Neonatal's visit on Friday his weight curve was way off.  Other than his weight, both Dr's were very pleased with how well he's doing.