No longer Purple.

In true Tyler form, he came home from the ED with the most energy I've seen all day and wanted eat and drink. I think all he did was nibble and sip on something until he went in for a nap at 330. He's still sleeping but not without me checking every once in a while that he's breathing and the right color. It's been quite a day and I'm hoping I can sleep tonight.

Short side-trip on Tyler's Bus.

We are back home. At the moment the plan is to watch and wait. We don't have a single combined answer to what is going on. We ended up spending more time waiting for doctors to call each other than anything else.

Pedi has seen viral cases cause the blue fingers and toes 1-2 month olds. Other than that call Neonatology.

Neonatology is leaning towards something viral. They don't know how that explains the blue fingers in an 18 month old. They suggested calling Neurosurgery.

Neurosurgery says to call back if there is still something not right after viral causes have been ruled out or neurological symptoms develop. Otherwise they don't see a reason to go poking around in his head.

ED Doc said that she found all of the above rather unsatisfying and had hoped to be able to give us a more solid answer.

So we are left with providing care and comfort as if it is a virus (most likely) and watching for other symptoms.

Hopefully, that is all.

Just when things were getting the good kind of boring.

This morning Tyler work up with a EPA super-fund site in his pants, blue fingers and toes, and a nasty case of the grumps.. I'm writing this from an ED bed in Nashua. We'll post when we know something.

And for kicks here's a pic of a recent "art" project.

November is Premature Awareness Month!

I'm collecting clothes for preemies! November is Prematurity Awareness Month. The Upper Valley is doing a clothing drive for the ICN at Dartmouth to help give clothes to babies born way too early. To see Tyler wear his first outfit 3 weeks after he was born was a real emotional triumph. (See earlier post titled "Tyler's new clothes" http://twentyfourweeks.blogspot.com/2008/06/tylers-new-clothes.html ) Seeing real clothes on him gave me a sense of normalcy and most of all hope. Dressing a baby provides so much enrichment and bonding. It helps the baby to familiarize themselves with mom and dad. It helps the parents to feel like they are a big part of their baby's life. Please help me pass hope to another family currently in the ICN with a donation of preemie clothes, blankets, or hats.

At the bottom of the this web page are links for patterns for those crafty people in the group who would like to help out as well as on-line stores.

http://www.marchofdimes.com/vermont/8026_30288.asp



We see a lot of Dr's tomorrow to start RSV shots for the winter. We've been extremely busy chasing after a walking boy who (you guessed it) LOVES to climb everything. We've caught him climbing up 2 toys he's position to get onto grandma's china cabinet. I don't have a lot of spare time to post right now. HA!

And he's off!

Yesterday was a very exciting day around here. Our regular Early Intervention therapist came back from some time off and apparently tyler was in the mood to show off. Sharron had to wake him up from his nap which is usually a recipe for a pretty grumpy session. Not the case yesterday. We got 3 or 4 sets of 2-4 unsupported steps out of him. This is really new, so new that neither Sharron or I had seen more than one or two unsupported steps from him so far.

This is the 3rd or 4th try at getting him on tape, and not a very good angle, but who cares? he's walking! Apparently the only items Tyler deems important enough to actually walk for are the remote control and a cell-phone.

Rachel is just loving school. If she had her way she'd go 7 days a week. Every time I ask her what she did at school that day the answer is always the same, huge smile and "PLAY". Everything else fits in to the no news is good news category.

Bet you didn't expect this!

So, I've been letting Tyler explore outside. He's been crawling and cruising around the playground and the chairs and such having a good time. Today, he found the stairs to the playground. No hesitation, he just started up on them. He was half way up the first time before I noticed him climbing. Talk about heart stopper. In all he went up four times before I called it quits for the day. He was not happy to go inside this evening. (Sorry the video is sideways, sometimes Ben forgets that video has to go the other way. He may be able to fix it later.)

He can stand!

To give you an idea on how strong Tyler is, watch this video. He is easily pushing his big sister around in a wooden carriage. And he loves it. This week he has taken many great "risks" and can now stand unassisted for a few minutes while playing with a toy. He has even flirted with trying to take his first step. I don't think it will be too much longer before he walks.



We are keeping busy with normal kid stuff these days. He is a normal kid with a big personality. At his 15 month wellness check a couple of weeks ago, he weighed in at 21 1/2 pounds. I'm just waiting for our normal therapist to come back and a talk with neonatology later this month to find out if they have any prefaces on when to turn his car seat. His feet are starting to look scrunched up and he's fussy now when we are in the car too long. For the most part we are enjoy the weather outside and doing activities. Just watching him grow like he should and like any proud anxious parent, waiting for that true first step.