A Message from Tyler!

Hey!  Would you support me as I walk beside my little red wagon this year when Mom and Dad take me to The Upper Valley March for Babies?  Just hit the purple sponsor me button over to the right.  
Thanks, 
Tyler

His favorite volume level these days is 11.  Yup really loud.

In a little over two weeks, we will all be heading to Lebanon for our annual March For Babies walk and to visit at the ICN Reunion.  Yes, the little red wagon will be going with us, but I'm excited this year.  Tyler may actually walk parts of the Walk.  He doesn't always want to sit in the wagon or the stroller for our neighborhood walks anymore.  He wants to get out and as he says "Tyler walks himself".  This will be a huge emotional achievement for me considering at the start we were told Tyler may have some real inhibiting disabilities due to the prematurity and the brain bleed.  This child is just amazing.  He's over come so many obstacles and probable outcomes.  He is constantly wowing the doctors with how well he's doing (right now the big wow is how well he talks!).  Today he floored the GI doctor when she came back in with a new prescription sheet by asking if he could hold his new prescription.  Clear as day he says as she comes back in, "Can I hold the prescription?".  When the Dr didn't respond to him quick enough, he holds his hand out and again asks "I hold the prescription".  She was just tickled and showing him off to another Dr.  Yes we still have our bumps and he does have a lot of extra needs that still take up a lot of my time, but WOW!  He walks, talks, thinks, and is just plain stinking cute!  Through all the hospitalizations, sicknesses, doctor appointments, not seeing well, he is the happiest, giggliest little boy.  What a strong character he is.  I hope nothing ever takes that a way from him. 

A rare moment of quiet sibling love yesterday.

We did see GI today because he is very slowly gaining the lost weight from the RSV.  So the prescription is hopefully going to stimulate his appetite and get him more interested in food.  We will have another weigh in in about a month to see how well that works.  We had today's visit because when he had his Neonatal's visit on Friday his weight curve was way off.  Other than his weight, both Dr's were very pleased with how well he's doing.