Since we tweaked Tyler's shunt in the beginning of September, we've seen a whole new Tyler. With in a few days Tyler started to over all look better. His color and eyes brightened and his appetite picked up again. His eye sight started to improve too. The last couple of weeks have been an interesting transition for all of us to the world of boy 2 year olds. He's finally into everyone's business. Poor Rachel gets the brunt of the whole deal. Tyler loves to get into her face and push her buttons. She finally broke down last week and announced that she doesn't like Tyler anymore. 2 and half years into this ride and the normal 2 year old stuff is what she complains about. Gotta love that girl.
We've lived September up to the fullest since Tyler has been feeling better. We took a day trip to the Boston Children's Museum and spent the better part of the day taking turns chasing two happy kids around. The best part is, the two kids where able to get away from each other and have a couple of hours with one of us and then after lunch we switched kids. We've taken a couple of short hikes into the nearby nature preserve. Ducks are a huge hit with Tyler. He could watch them for hours. We also finally got to Story Land this past weekend. Wow, was that a hit with the kids. The smiles on their faces when we where on the rides was amazing. Tyler found only one ride he didn't come off smiling and after the fact I realize he shouldn't have been on it because of size requirements. But as we were twirling around, he just nestled deeper in my side patiently waiting to say, "Get off Turtles please". But being able to drive his own tractor and antique car well made up for turtles.
So we have been busy living a normal life punctuated here and there by a few doctor appointments. We saw neurosurg last week up in Dartmouth. It was a very good visit. Everyone was excited to see how well he responded to the shunt tweak and that his eye sight was definitely improving. We go back up late October for another MRI and followup. The surgeon wants to keep a closer tab on it to make sure Tyler's fluid doesn't move around so much and create symptoms again.
We also took a trip down to meet someone at Boston Children's for a second pair of eyes on Tyler's condition. There seemed to be a bit of miscommunication of why we were there. We were hoping to find someone who would look at the images and confirm we haven't missed something and who was willing to work with our surgeon at Dartmouth. Although he did remind us of facts and information about hydrocephalus which was useful to hear from a different perceptive, it wasn't quite the meeting we were hoping to have. The main point he made was, it doesn't matter a bit where the fluid is in Tyler's head. What matters is that he's acting like he's suppose to.
And he's one hundred percent right. I could give a rat's bum where the fluid is. I just want Tyler to always have that mischievous glint in his eye, that incredibly infectious laugh, and his love of life that seems to permeate his whole being. So for now, we ride the wave of good days and if and when we see Tyler start to look off, we will head back north for another tweak.
Halloween.
Loves his tractors and trucks.
I believe there is more paint in his hair than on the paper.
Getting loved by Sis.
Grumpy about being loved by Sis.
Since we tweaked Tyler's shunt in the beginning of September, we've seen a whole new Tyler. With in a few days Tyler started to over all look better. His color and eyes brightened and his appetite picked up again. His eye sight started to improve too. The last couple of weeks have been an interesting transition for all of us to the world of boy 2 year olds. He's finally into everyone's business. Poor Rachel gets the brunt of the whole deal. Tyler loves to get into her face and push her buttons. She finally broke down last week and announced that she doesn't like Tyler anymore. 2 and half years into this ride and the normal 2 year old stuff is what she complains about. Gotta love that girl.
We've lived September up to the fullest since Tyler has been feeling better. We took a day trip to the Boston Children's Museum and spent the better part of the day taking turns chasing two happy kids around. The best part is, the two kids where able to get away from each other and have a couple of hours with one of us and then after lunch we switched kids. We've taken a couple of short hikes into the nearby nature preserve. Ducks are a huge hit with Tyler. He could watch them for hours. We also finally got to Story Land this past weekend. Wow, was that a hit with the kids. The smiles on their faces when we where on the rides was amazing. Tyler found only one ride he didn't come off smiling and after the fact I realize he shouldn't have been on it because of size requirements. But as we were twirling around, he just nestled deeper in my side patiently waiting to say, "Get off Turtles please". But being able to drive his own tractor and antique car well made up for turtles.
So we have been busy living a normal life punctuated here and there by a few doctor appointments. We saw neurosurg last week up in Dartmouth. It was a very good visit. Everyone was excited to see how well he responded to the shunt tweak and that his eye sight was definitely improving. We go back up late October for another MRI and followup. The surgeon wants to keep a closer tab on it to make sure Tyler's fluid doesn't move around so much and create symptoms again.